10-144 C.M.R. ch. 709, § 11.0 - FOLLOW-UP
11.1 The administrator of the hospital or
birthing center shall assure a protocol is in place to respond to abnormal
screening results based on the level of urgency and clinical
presentation.
11.2 For the purpose
of coordinating efforts to detect, prevent, and treat CCHD the Department may
share individually identifiable health information related to the potential or
actual presence of CCHD, to the extent permitted by law, with other public
health programs and agencies whose mission is to detect, prevent and treat
these disorders such as a health department of another state in which a child
resides.
11.3 In order to assess
and ensure timely and ongoing treatment related to critical congenital heart
defects, and to evaluate the effectiveness of screening and health care
services in reducing the morbidity and mortality caused by screened disorders,
the Department will collect short and long-term information on individuals
confirmed to have a condition included in the program. Healthcare providers
will provide requested information within 30 days of request or as otherwise
indicated in the request relative to the level of clinical urgency. As needed
to ensure patient access to timely and ongoing medical treatment, providers may
disclose medical information to the Department in the minimum amount necessary
to accomplish the purposes of this regulation. Consent is not required for this
disclosure because this rule and the statutes it is based on are made to
protect the public health and welfare.
Notes
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